Bubbly, bright, 13-year-old Madisen lives in Hamilton with her mom, stepdad, older brother, sister and family pets, Fred and Shark. A grade eight student, her favourite subjects are French and Art. She works hard to maintain a solid B average – an impressive accomplishment because her medical challenges mean she misses many days of school.
Madisen is affectionately described by her mom as being “feisty and strong-willed” mainly because she has been living with painful physical challenges most people would find unbearable. At age five, Madisen was diagnosed with Osteogenesis Imperfecta, also known as “Brittle Bone Disease,” a condition that causes her bones to shatter from the slightest bump or pressure. She also has epilepsy. Madisen’s condition is so rare she is considered one-of-a-kind.
Madisen loves to swim because in her words, “I can do whatever I want in the water.” She also loves to sing, so much so that she inspired a group of kids with special needs to join her to form a choir. Singing is a way Madisen can express herself without worrying about injury.
One day, she wants to become a Child Life Specialist to help kids undergoing painful or frightening hospital procedures.
As a We Care Ambassador, Madisen is excited to learn new things and share her story “so other kids don’t feel alone and to let adults know what we go through.”
“I want to tell people that we are regular kids too. We may just need some help to do regular everyday things.”